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aicardi goutierres, als, century 21, charity, charity recipient, childrens charity, christmas volunteer, disabled child, donating, easter seals, erinoaks, grandview kids, holland bloorview, how to choose a charity, icebucket challenge, march of dimes, presidents choice, severely disabled, stepmother, volunteer
How do you choose a charity? Or does the charity choose you?
This past summer was the year of the viral Ice-Bucket Challenge, bringing about unprecedented awareness and millions of donations to ALS.
Now as we’ve heard so many times already, its the season for giving.
Charities are out in droves, pulling at our heart strings and pocketbooks. So how do you choose a charity?
In my family’s case the charity choose me.
Despite all the abundance we see around us, rich store displays, holiday lights, and jammed pack shopping malls, its difficult to think that there are many families still going without.
I wanted to share the inside scoop with you of a charity recipient. Some of you know that I am a full time step-mother to a severely disabled 15 year old girl. Her father, David and I have taken on the burden of full time care for Bianca, as her mother has chosen to no longer participate. “Burden” may seem like a harsh word for taking care of a needy child, but Bianca requires 24/7 care, she suffers from a rare neuromuscular disorder (her brain functions at the level of a 4-month old infant).
While she can move all her limbs, she cannot talk, or walk, or even sit up on her own, she does not have the cognitive ability to swallow – so she’s on a liquid diet, fed through a tube directly to her stomach (Gastro-tube).
She is a beautiful gentle soul, with dark hair and blue eyes.
Her skin is still soft like a baby, having been protected from the usual wear and tear of every day, active living. Even her hands and feet are still pudgy like those of a baby, from not using them all these years.
Perhaps because I’m the step-mom, I am able to stay one, thin layer of detachment from an otherwise devastating situation. But I am asked the question many times how do I do it?
Bianca invoked a compassion in me that I didn’t realize I had; and so the answer is simple for me, I count our blessings daily and I know that no matter how difficult things are, somewhere out there, there’s a family suffering from an even greater loss.
In Canada, families like ours do receive help with nursing, respite care and supplies. Then there’s the charity support. The charities that have directly helped Bianca is Easter Seals, March of Dimes and Presidents Choice Children’s Charity.
There is also Erinoaks Children Centre in Peel region and their counterparts Holland Bloorview in Toronto and Grandview Kids in Durham. This is where children like her get their therapists support.
Because Bianca is severely disabled she requires a lot of equipment: custom wheelchair, feeding machine, suction machine, a lift — just to name a few….equipment running into ten thousands of dollars. Of course, while much of it is covered by government and charities, not all of it is.
If you are considering donating to a charity, here are some articles and links to help you choose:
Globe and Mail article on Charity
http://www.cra-arc.gc.ca/chrts-gvng/lstngs/menu-eng.html
http://www.attorneygeneral.jus.gov.on.ca/english/family/pgt/charbullet/bullet5.asp
If you do have a little extra to give, I hope you will choose a charity wisely, one that pulls at your heart strings, and that you can now choose with peace of mind, knowing that your hard-earned dollars are going to a good place.
I am proud to be with Century 21 who happens to be a national sponsor of Easter Seals Canada and a portion of my sales are donated to Easter Seals.
So how do you choose Charity? Do you volunteer? Let me know how your ideas on paying it forward!
May God Bless you and your family with health and love, for that is all we really need.
Merry Christmas, Happy Hanukkah, Happy Kwanzaa, Happy Holidays!
Blessings,
Ivy